So its been a long week! We finally got to come home from Charolette Va Tuesday. My daughter had been in the hospital there since thursday of last week having up to 30 seizues a day! After they got meds in her they started decreasing slowly but surely. The drs there are phenominal but they didnt really answer my ? as to what was bringing them on and did she have epilepsy. When I got home I did some researching and to my surprize "NOT", inherited frontal lobe epilepsy appeared. So it seems to me this is what she has because they came in clusters. The whole thing took a toll on us all! We were 4hrs away from home. My mother kept my 4yr old which was sick too with a UTI. It has been an exhausting two weeks. Things are starting to look up now she is having 2 or 3 seizures a day now lasting 15 to 30 seconds instead of 20 or 30 lasting 1 to 2 min Yes I think the medicines have started to affect her, however one makes her moody and the rest make her sleepy. The drs say her body w...
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