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My baby gurl

She had a functional MRI last week. Today they called us to let us know they couldnt touch it. It is to close to her speach  and other things so for now her seizures has stopped and they are sending us to the seizure clinic. I dont know what to do anymore xcept cry. As a mother I know I cant do this though I have to be strong for her so I am going to try my best! ITS NOT EASY BEING CHEESY Wishing everyone a peaceful night.
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hmm

Well today I either did to much or something my back is killing me my arm is hurting and my body is just tired and I have had horrible heartburn! I hope its nothing I think I am going to try to do my christmas tree tonite NOthing else to do everyone is asleep and I am drying clothes Im up I my as well do something I think I am over exerting myself lately I know cleaning and stuff that normal people shouldnt make me ill literally but I swear it does. So tonite while I have the Christmas music on i am going to enjoy myself and do something I like decorate and light my Christmas tree! I only wish I had the stuff that I bought yesterday Then I really could decorate I love my ornaments Peace OUT
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long two weeks

So its been a long week! We finally got to come home from Charolette Va Tuesday. My daughter had been in the hospital there since thursday of last week having up to 30 seizues a day! After they got meds in her they started decreasing slowly but surely. The drs there are phenominal but they didnt really answer my ? as to what was bringing them on and did she have epilepsy. When I got home I did some researching and to my surprize "NOT", inherited frontal lobe epilepsy appeared. So it seems to me this is what she has because they came in clusters. The whole thing took a toll on us all! We were 4hrs away from home. My mother kept my 4yr old which was sick too with a UTI. It has been an exhausting two weeks. Things are starting to look up now she is having 2 or 3 seizures a day now lasting 15 to 30 seconds instead of 20 or 30 lasting 1 to 2 min Yes I think the medicines have started to affect her, however one makes her moody and the rest make her sleepy. The drs say her body w...
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